Reference | Purpose | Methodology | Data Elements Evaluated | Key Findings | Relevance to Study |
---|---|---|---|---|---|
[Benedetto et al., 2019] [37] | Design and validate SWInCaRe, a web-based application for cancer registry management | Manual vs. automated data processing; record linkage algorithms; usability evaluation | Cancer case coding, incidence, mortality, patient demographics | Automated procedures improved time and cost-efficiency. The system enhanced usability for cancer registries. | Highlights the efficiency and challenges in automation for cancer data collection, relevant for integration into cancer surveillance systems. |
[Yang et al., 2021] [38] | Develop a web-based system to explore cancer risks with long-term drug use | Logistic regression on population-based datasets | Drug exposure, cancer risk factors, demographic characteristics | Identified associations between drug usage and cancer risk; provided predictive tools. | Demonstrates integration of predictive analytics in cancer surveillance, offering lessons for advanced functionality. |
[Krejčí et al., 2021] [39] | Development of the Czech Childhood Cancer Information System (CCCIS) | Combined data from national cancer registries, death certificates, and clinical databases | Incidence, survival, mortality | Interactive platform enabled comprehensive epidemiological reporting for childhood cancers. | Example of integrating diverse data sources for a specialized cancer registry system. |
[Henton et al., 2017] [40] | Implement SEER Cancer Survival Calculator (SEER*CSC) | Population datasets; usability testing | Survival rates, patient demographics, treatment data | Highlighted barriers in integrating tools into clinical workflows; improved communication with patients. | Useful for identifying challenges in tool adoption and integration with existing systems. |
[Lundin et al., 2003] [41] | Evaluate an internet-based method for breast cancer survival estimation | Kaplan-Meier survival curves based on Finnish nationwide data | Survival probability, tumor characteristics, treatment outcomes | Demonstrated accuracy of survival estimates using web-based tools. | Validates survival prediction methodologies and underscores their utility in cancer care. |
[Liang et al., 2023] [42] | Develop a visualized nomogram for small-cell lung cancer (SCLC) | Multivariable Cox regression; SEER database | Prognostic factors, survival probabilities | Visualized nomograms achieved high accuracy and usability. | Emphasizes the role of user-friendly tools in stratifying cancer risks and improving clinical decisions. |
[Bianconi et al., 2012] [43] | Use IT tools for cancer registry and network integration | Web-based systems; GIS for data visualization | Incidence, mortality, survival, geographic analysis | Enabled geospatial mapping of cancer data, improving regional surveillance. | Exemplifies integration of GIS for enhancing data utility in cancer monitoring. |
[Nasseh et al., 2020] [44] | Optimize oncology-related data analytics via Munich Online Comprehensive Cancer Analysis (MOCCA) | In-memory database analysis | Tumor descriptors, treatment data, demographic data | Improved data transparency and analytical capabilities for large datasets. | Highlights advanced analytics and visualization for multi-faceted oncology data. |
[Mason et al., 2021] [45] | Develop a web-based calculator for metastatic progression in bladder cancer | Longitudinal dataset analysis; Markov modeling | Metastatic patterns, survival statistics, treatment pathways | Offered spatiotemporal insights into metastatic progression. | Demonstrates the importance of dynamic, real-time prediction in cancer systems. |
[Jones et al., 2021] [46] | Pursue cancer data modernization with cloud-based systems | Pilot cloud computing platforms; automation analysis | Incidence, case tracking, real-time data | Automation reduced manual labor; improved timeliness and accuracy in cancer data reporting. | Supports the need for modernization and real-time data capabilities in cancer surveillance. |
[Conderino et al., 2022] [10] | Assess the potential of electronic health records (EHRs) for public health surveillance of cancer prevention and control. | A scoping review of studies on EHRs for cancer surveillance, followed by a test of proposed indicators using common data models. | Indicators related to cancer prevention, early detection, treatment outcomes, and survivorship care extracted from EHRs; tested indicators for their feasibility and accuracy in public health surveillance systems. | EHR data can be a valuable resource for cancer surveillance, with indicators providing insights into prevention, early detection, and control. Challenges include data standardization, integration with existing CSS, and ensuring data quality and completeness. | Highlights the utility of advanced technological integration (EHRs) in cancer surveillance systems, aligning with this study’s emphasis on technological adaptability and standardization to improve CSS effectiveness. |
[Ben Ramadan et al., 2017] [47] | Usability assessment of Missouri Cancer Registry’s Interactive Mapping Reports (Round 1) | Mixed-methodology usability testing; System Usability Scale (SUS) | GIS tools usability, mapping effectiveness, satisfaction metrics | Identified issues with user satisfaction and usability; recommendations for improvement. | Highlights the importance of user-centered design in GIS-based cancer surveillance tools. |
[Ben Ramadan et al., 2019] [48] | Usability assessment of Missouri Cancer Registry’s Interactive Mapping Reports (Round 2) | Updated usability testing; comparison to previous round | GIS tools usability, task success rates, user satisfaction | Improved task completion rates; highlighted usability barriers specific to cancer professionals. | Reinforces the role of iterative refinement in designing effective cancer registry systems. |